First of all, I just found this subreddit unexpectedly tonight, and I'm so glad I did. I want to learn as much as I possibly can about my pituitary health. I'm grateful to you all!!

So to give a bit of history, I went through a handful of endocrinologists (big surprise lol) before I landed on my current one, Dr. F. He was great at first, and he was the one who found my pit tumor(s). But he's no longer being helpful if I'm being honest. My meds aren't working (more on that in a minute), and I've told him this. But he just keeps repeating the same bloodwork and pushing these dumb supplements, which I've also told him aren't working. But he isnt being helpful. So I've started transitioning to yet another endocrinologist, and this one is a member of the Pituitary Center for Excellence. But it's two hours away, and I can't drive....and the appointment is not until May. It's just a logistical nightmare, so I'm hoping its worth it. But I digress.

So my first question is this: I've had my prolactin levels tested, and they're always normal. Yet I have occasional galactorrhea. So do I still possibly have a prolactinoma or what? Usually, I would think galactorrhea would pretty much tell you that your prolactin is high. But mine is fine. I can't remember the size of my tumor(s), but galactorrhea with normal prolactin levels is just confusing to me.

My second question is this: I've read that some people experience hair loss with the Cabergoline. I figured Cab would decrease hair loss! This is especially horrifying to me, because, thanks to my lovely hormone issues, my hair loss is already so bad that you can clearly see my scalp. I can barely deal with it as it is. Could this potentially life-changing medication actually make my already-bad hair loss even worse!? screams in brain tumor

Which brings me to my next question. None of the medications I'm on are helping with symptoms at all. All those dumb supplements Dr. F. had me on were not helping. I also struggle with weight gain because I'm hungry literally every second of every day, and I'm never full unless I eat an obscene amount of food, and even then, I'm hungry again in 30 minutes. My brain is literally screaming at me to pig out every second of every day. So he put me on Ozempic, the only semiglutide my insurance will cover. I've increased the dose 3 times now, and yet I still managed to gain 4 pounds. The food noise is still out in full force, and it's not from emotional eating or sleep-eating, which I don't do. I've told Dr. F that the Ozempic isn't working, and he doesn't seem to care. It's like he just forgot that he found a brain tumor??

I am also taking Spironolactone for the hair loss. (Thyroid and Vitamin D are normal.) I have been on every possible dose of Spiro for years now, and it has just barely caused the tiniest, most pitiful amount of scalp hair regrowth. The hirsutism has only gotten worse. Before I go anywhere, I now have to sit there for an hour and tweeze out all the facial hair, only for it to grow back in less than a week. The Spiro just incredibly underwhelming. The medication more or less doesn't work, just like the Ozempic and the supplements. And again, I've told Dr. F the Ozempic isnt working, and again, nothing. So why won't these medications, specifically targeted to hormonal symptoms, work on me??

If it helps, I have a few symptoms of PCOS and a few symptoms of Cushing's disease, but don't quite fit the bill for either one. This is what doctors have told me. Countless salivary and urinary cortisol tests have also been normal. So the only remaining option is my pit tumor(s). My vision is fine, thankfully.

I know none of you are doctors, but please answer all three questions if you can. Maybe offer your personal experience or something. Thanks in advance!! ❤️