I think I was diagnosed maybe a year ago? Maybe less I guess. I've dealt with symptoms at first about a year and a half ago, so who knows how long it's actually been there.

I've been seeing a doctor for about 9 months for my prolactinoma.

I was put on cabergoline first, .5 mg twice a week. I wasn't able to take it for very long before I started getting super dizzy and just feeling horrible. I missed a lot of work because of it. When I talked to the doctor about it, I got out on Bromocriptine (don't remember how much) an do was only able to take it for 4-5 days because I was literally hallucinating.

I told the doc, got back on cabergoline at a lower dose.

The cab interacted with my anxiety meds which made me miss more work...

I tried talking to my doc about surgery, and he said that I should keep taking the cabergoline for another 4-5 months and just see.

I finally got in to see a different doctor yesterday, and told him everything I've been going through. He immediately said he would refer me to a surgeon.

I have to go in for another MRI this afternoon, which in not really looking forward too, but at least Its a step to get me in to see the surgeon.

I was told by this doctor that before they had cabergoline and Bromocriptine that everyone just got the surgery, and that it has a really high rate of success. I was also told that the issues I've been having with my eyes, and also surprising my jaw, can be because of the prolactinoma. I knew that my eyesight might be, buthadnt heard anything about jaw or bite problems being related to it.

I was also told that I do have a macro prolactinoma according to my last MRI. which I had no idea. My doc was like like "it's this big" and made it seem like it was not that large.

I just wanted to rant about it I guess. I've felt like crap for almost 2 years because of this nonsense and am ready to be done with it.

I really appreciate having found this reddit, and reading about others experiences. It's helped me with my own, and also made me realize that I can't and don't want to keep taking the medications.