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So back in October of last year I started developing these..tics(?) it’s like a seizure where my body tenses up and I can’t keep my head or hands from moving. It got so bad that I left my job in November because I fell down the stairs at work. And now I’m having them daily and I’m frustrated. I’ve tried to get on disability but they denied it because they didn’t have enough evidence so I reapplied and talked to my doctor about it. He basically ignored that I went to the ER multiple times for this and said he thought it was in my head since he didn’t see it happen and to just go to therapy and work out more since he thought it was tied to my weight. (I know now that he was just fatphobic since every time I went to him it he always said it was a weight issue. Arm hurts? You’re fat. I broke something? Fat.) I was already in therapy so I told my therapist and she also brushed it off because she didn’t see it I switched both primary care doctor and therapist and while my new therapist has been lovely, the new primary care doctor sent me to neurology and ordered an MRI,sleep test, and an EEG (sleep deprived) it’s been 2 weeks and no one’s called me. I messaged both my primary care and neurology doctors and my primary just said “well I see you emailed neurology so just wait for her reply” meanwhile neurology still hasn’t said anything nor have I been called. I just want to know what’s wrong with me because I’m scared. I hate this. I want to go outside, I want to drive again, I want to be around people without the fear of me having these stupid tics.
Thank you 🫶🏼 I originally wasn’t going to reapply because I felt like maybe I didn’t deserve it. I’m also hard of hearing and have major depression but I was told those weren’t enough to get me in. My uncle has cancer and was denied one which was super insane to me. I am starting to look for some kind of case worker to see what kind of information I might need because I’m just so exhausted all the time and some days I just want to give up on it and just sleep.
I’ll do my best to look for someone who can help and hopefully get what I need soon! Also, does it really take another 6 months for them to decide again?
Thank you! I was smoking weed a lot in highschool but I cut down a lot after. Other than that, I’m not taking anything else. I’ll bring it up to my doctor and see where to go from there. Thank you :)
Yes! When I felt it started I called my mom but during the call I was stuttering and trying to get words out but I couldn’t. (She worked with me but was on vacation at the time)and she immediately called the manager. So the assistant general manager and the general manager saw me and were the ones to take me to the ER originally. I’ve talked to them since and have gotten a statement from them AND the ER I went to. My doctor dismissed them because it wasn’t proof enough to him. 🙃 my new primary care doctor asked my fiancé to record it happening so next time I see her at least there would be proof but I won’t see her until I do all the tests that were ordered. So my fiancé does have a few videos of my episodes.
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I did one EEG originally and got results but now she wants me to do more tests and is saying they’ll call me but I haven’t heard from anyone in a few weeks