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Following up on my other post about mom reaching the end of the road with Rytary...yes, the MDS yesterday confirmed the best next step is DBS.
We have exhausted non invasive medication options for her Parkinson's.
She is terrified because the two people she knows who have had DBS - well, let's say it ended poorly for both of them. They came out feeling worse with worse symptoms. That said, on her "on" time, she's a lot better than those two people were, going into their surgeries - she's about as good as normal!
So, appreciate any insight on success and failure rates of DBS. I scoured old posts and it's hard for me to tell how many folks regret getting DBS vs it changed their life for the better...
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- 2 years ago
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