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My son died in my arms today at 1:45pm. We had to make the unbearable decision to let him go. We decided the brain damage was too great for him to have any sort of meaningful life. We did get a second opinion and they agreed. I got to hold him for 20 hours without the breathing tube and EEG nodes, looking a little more like himself. It almost felt normal. He was stubborn right up until the end.
I am a mix of grief and emptiness and rage. We want to make them pay for what they did to our sweet boy as much as we can. And use whatever we can to honor his life and make others happy.
Playgrounds were his absolute favorite so we want to build one in his name. Maybe open a used book shop, one of his other favorite things. Those ideas are what is keeping me going right now.
Thank you for all of your kind words and advice.
It is my unthinkable fear. My heart goes out to you.
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- 2 years ago
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