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I have twins who were in the NICU since December; 160 day stay and now they’re home with me and MY health anxiety is through the roof. I apologize in advance for my rambles.
They are 8 weeks corrected but almost 6 months actual age. It’s been an incredibly hard transition from 1 to 3 as a newly single mom. We moved across the country last week and my daughter, L, is showing severe allergies/reaction on her cheeks and neck. There isn’t a specific time of day this is happening, but it gets worse when she runs hot or cries. It’s not scaly, a little bumpy, but it will ooze if it gets irritated enough. I tried keeping it dry, moist, lotion, etc. It never fully clears up and comes back especially when she’s eating from a bottle is when I notice it getting pink and then red, and usually within an hour or two of eating (breastmilk) her cheeks are fire engine red and she’s agitated. First doctor (local pediatrician) gave a cream and suggested steroids/Benadryl and she screamed every time I applied it, so I went to a second doctor (dermatologist online over the weekend) and that doctor basically ruled out eczema and said this doesn’t appear similar at all. The next steps are allergy testing for food and environmentals and possibly FPIES? She seems so uncomfortable all of the time. Her twin sister has no issue eating, no skin issues, no different bottle/milk setup, etc.
What should I expect/ how can I prepare for testing? I don’t want to see her miserable. Should I continually document this with pictures, etc? Go find another doctor ASAP? The wait is about 2 months for testing unless I drive her to another state and pay out of pocket. I’m extremely nervous this could get worse quickly or spread to other areas.
Edit: I tried reaching out to their birth father for any childhood allergies or skin sensitivities and haven’t gotten a response so I have no extra info to help narrow it down. Thanks!
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