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Looking for other people with PM/D icds.
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Hello I am 25 M and i've had A pm/D since I was 13. I have LVNC (left ventricular non compaction) and I have been shocked well over 10 times but I dont remember how many exactly. the last time was in feb when i got hit twice. I had my first one implanted on oct 28 of 2011 and the replacement in 2019. They recently changed my "dose" of electricity from 18J to 22J because of my age, has anyone experienced both? Can you tell the difference/ does it hurt more? Is there anyone else looking for a ICD penpal (we are magnetic after all dont want to get too close to you 😉) Maybe start a discord groupchat if there isnt one already??

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1 year ago