Diagnosed in 2020. I don’t have a “high lesion load” but the ones I do have are very effective at screwing with my brain and body… Per doctor’s recommendations, I stopped working and I’ve been trying to get disability for months. One income, since October… I have a lawyer and they called me two months ago all excited because I had a “Disability determination meeting” scheduled. Which was three weeks ago, the meeting ended up being me talking to a psychiatrist for half a hour so they could evaluate how my symptoms are effecting my life and mood. Mind you, I’ve always completed tons of paperwork detailing these things and they have my medical records… The strain from draining our savings, taking care of our kids, car repair trouble, and waiting to hear back on the disability has put me into a flare. Oh and did I mention I don’t currently have insurance because I can’t get out on my husband’s plan until Medicaid denies me (which they will because he makes too much money) but they just keep putting it off. I’m so frustrated! And now I have to have more MRIs and I can’t have normal steroid treatments because I’m allergic. So I have to wait for the special drug company to call me and approve me for their assistance program… (because even with insurance the copay last time was $40,000, luckily I got on the assistance program then too)

Just needed to vent a bit!!! 😮‍💨😮‍💨😮‍💨