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My mom’s doctor is trying to pressure her to go on another medication.
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So my mom has had MS for over 12 years now and has been on Tysabri for 12 years. Her doctor is trying to put her on a new treatment that my mom isn’t comfortable with and my mom has expressed that and the doctor keeps trying to redirect her to stop tysabri and start the new treatment instead and has even gone to the point of stopping it in June, so my mom’s last Tysabri treatment is in June. The reason why the doctor wants to is because she says my mom’s percentage for Pml has gone up because my mom is JC positive, but my mom knows the risk and is okay with it and is comfortable with continuing Tysabri. My question is, is this even right for her to stop my mom’s treatment? Doesn’t my mom have the right to continue treatment? I feel it’s her choice. We’ve tried to find other hospitals, but there’s waitlists and we don’t want her off the treatment for too long because it’s dangerous you know. The only thing I can think of is to go above the doctor’s head and complain to them how she’s treating my mom and just ask to get put with another neurologist in that hospital.

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I'm on Kesimpta and I love it! The only side effects I had were the first dose, which is normal for anybody. I really recommend this drug over tysabri, which has a lot more risks! I know it's scary to switch meds but Kesimptas efficacy in amazing and I personally love it!

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9 months ago