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Is it wise to stop DMT?
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I've decided to not be on DMT for the foreseeable future. When I was, my quality of life was horrible. I would faint for no reason. I was way more fatigued than I am off DMT now. My appetite was practically non existent and I was so, so weak.

I'm in India and unfortunately, there isn't a lot of MS awareness here. I haven't been able to find a neuro who is both, well-versed with MS and kind. We don't have MS nurses, there's no medical professional I could call if I'm in the middle of an emergency, and my only option is to go to the ER, where the doctors and nurses pay negligible attention to you. I'm mentioning this because this is a huge reason to why I'm choosing to not be on DMTs as well.

Some background on my condition: RRMS, diagnosed in 2020, probably had it since 2014. I get flare ups occasionally when I'm stressed. My MS is married to epilepsy and migraine. Current disability level is mild. Occasionally forget how to use my legs to walk. Paresthesia in my right leg and right arm. Optic neuritis and diplopia in my left eye.

My doctor was of no help and very apathetic, didn't answer any questions conclusively. So, what I need from you guys is some experiential answers. Please and thank you.

  1. If I maintain a healthy lifestyle with a MS friendly diet, regular exercise and avoiding my triggers, is it sensible to even think that this could work?

  2. What can I ask my loved ones for support with?

  3. If you chose to discontinue DMT for some reason, how did that fare for you?

  4. Are there any alternative therapies I should look at?

Edit: I was on Natalizumab before.

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25F | RRMS | Dx:Jan 2020 | India

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Posted
1 year ago