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Possible MCAS?
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Hello, I thought I post this here as it's one of the possible conditions I've come across that I think might explain symptoms I've been having. Here it goes.

27M, 300lbs, 5'9. My confirmed health issues are ocular rosacea, high blood pressure, mild fatty liver and gerd.

I've been having weird symptoms for almost a year. Idk if they are connected or not but here they are.

Skin Issues- I get red knuckles quite a bit. I get red bumps on my hands and feet that almost look like pimples. Sometimes my arms and face get really red and feel very warm, almost like its a sunburn, however its not as I spend most of my time indoors and almost always wear hoodies when I leave the house.

Temperature- I get hot flashes often, normally during the evening. When this happens, my body temperature usually shoots up to around 99.1 on average. As soon as I feel better, my temperature is more normal, anywhere from 97.4 to 98.5. Sometimes I also wake up in the middle of the night very sweaty and hot despite sleeping right under an air conditioner.

Sleep- Its been over a year since I've slept all the way through the night. I almost always wake up at least once to pee and sometimes wake up multiple times. Sometimes I wake up and my heart is beating out of my chest. I usually fall back asleep pretty quickly. I've had a stress echo recently and it was completely normal. Also, like I said, sometimes I wakeup wet from sweat.

Digestive- I mentioned I was diagnosed with gerd. I constantly gave bad gas. Sometimes the gerd flares up so bad I feel like I'm having a heart attack or can't breath. I've been to the ER 4 times in the past 3 years over it, but heart tests always come back normal. I've also had 2 stress echos.

Ocular- I was diagnosed with ocular rosecea but maybe it's possible the Dr was wrong. What happens is sometimes I feel like there's a scratchy irritating pain in my eye as if it's caused by an eyelash or something but there's never anything there. I also get a lot of small hard little deposits. Flaky skin around the eyes.

I'm not sure if any of these things can be caused by conditions I already have or if they are separate or if there is something else going on. There are so many symptoms for MCAS from what I've seen but all of mine seem to be included. I also suspect Maybe an autoimmune disorder or something. Is there any specific tests I should try to get?

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1 year ago