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“Previous” Lyme infection but persistent joint pain
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Hey I just joined this sub I truly don’t know where else to turn at this point, so I apologize if this is not the right forum for this.

Background: 27M I was diagnosed with a “previous” Lyme disease infection a few months ago. I was bit by a tick on my scalp when I was about 10 years old and was told it was not a deer tick so I would be fine by the summer camp nurse. I’ve been having persistent joint pain (both knees and sometimes shoulder) since October of 2021 that has been getting progressively worse and it’s at the point where it’s becoming debilitating. My PCP sent me to a rheumatologist who took x-rays and said everything was perfect and there was no damage or fluid and my rheumatoid levels are perfect. Dr. prescribed me 30 days of doxycycline. The doxycycline did absolutely nothing for me at the end of the 30 days. I was then given an MRI which again showed nothing and the rheumatologist told me to go to an orthopedic dr. Today the orthopedic Dr. Looked at my x-rays and MRI and told me that there’s absolutely nothing he can do for me because structurally my muscles and bones are totally fine. He said my knees are in perfect condition.

This past weekend was the worst it’s ever been and I had to use a cane to stand at a concert and even with the cane it was almost unbearable (wore two knee braces and arthritic cream as well). I just don’t know what to do next. I’m only 27 I can’t just give up and accept this. I have a very physically active job that I actually enjoy and my passion in life is live music which requires a lot of standing. I’m getting engaged in a few weeks and I’m terrified I will not be able to provide for my fiancé or do the things we love to do together anymore. The doctors look at me like I’m crazy or making it up and no one I’ve seen can help me or point me in the right direction.

I’ll take any advice I’m not opposed to alternative forms of medicine either. Hoping someone can help. Thanks.

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2 years ago