Hello fellow warriors, brothers and sisters, my 'family'. I need some help. I became eligible for a Medicaid Waiver on 10/27/2023. When that happens, you lose any MCO coverage....and you get traditional medicaid....and the waiver program is 'supposed to' provide services on top of that like Attendant Care (that means you can have somebody help with light housekeeping, light meal preparation, go to the grocery store for you, go to the post office, small errands)....these people can also attend doctor appointments with you and that helps to prevent gaslighting..... Unfortunately....it has been almost a year, and I have not been able to get any attendant care....so I lost the MCO coverage and didn't gain anything.....in addition....medical expenses are not being counted nor is mileage for deductions when calculating SNAP.....DCBS through CHFS is who administers that federal program in the state of Kentucky. The Ombudsman's Office oversees CHFS supposedly but used to be part of the same group (recently moved to a different area but ties still exist making them not unbiased).....the Department of Medicaid Services (DMS) in KY oversees the Medicaid program for the state.....I became disabled (by the SSA SSDI standards) as of June 30, 2022....really I have struggled for many more years than that....I first applied for disability over 10 years ago....I finally received the first payment this year (in 2024) in May.....there are so many issues I don't even know where to begin......Per the code of federal reegulations and also per USDA-FNS SNAP calculation guidelines....medical expenses are to be deducted when calculating snap if they are over $35.....I have had $8,000 of medical expenses so far this year.....nothing has been deducted and nothing has been covered by the waiver except for 2 pair of compression stockings....and it took well over a hundred emails, probably 60 hours of phone calls.....talking to dozens of people....just to get those....those stockings are already worn out and I need new ones....and I am unable to get them....the operations manual for DCBS and the Waiver program state that there is no limit to the number of stockings.....DCBS is making me get a doctors letter stating that the stockings that I have, which have giant holes in them, are no longer effective.....the doctor thinks it is ridiculous and like he should not have to complete such a ridiculous task....and I get it....but that leaves me hanging.....I have contacted every possible agency....filed every possible appeal at every level of the organizational structure here....I have requested many hearings.....CHFS removes hearing requests without telling me, and lists them as duplicate when they are not regarding the same issues.....as an example....I am being treated by an out of state doctor for Long Covid Microclots with the triple coagulation therapy protocol.....because the doctor is out of state, medicaid won't cover anything stating 'there are plenty of doctors in Kentucky that treat Long Covid Microclots' which simply is not TRUE......they lie.....they cheat.....they prevent me from accessing goods and services that I am eligible for BY LAW.......I have talked to Legal Aid - they only help with initial snap and medicaid applications. I have talked to the Ombudsman's office maybe 60 to 70 times with documentary evidence....I have filed complaints with the KY Attorney General who states that Medicaid is not something they help with in cases like mine. The case manager I have says he has not ever seen it be so difficult for anyone to get things they need pointing also to discrimination against me. I contacted the Office for Protection and Advocacy....they are not willing to help.....I contacted the Office of Civil Rights federally - no response....the federal AG and DOJ....no response....the VP's Office....no response....POTUS office....no response.....CMS.....no response......I learned I had a hearing that I had no idea about (was not ever notified) last Friday on 8/30......the woman that called me told me she would talk to me more at the hearing on 9/3 at 1pm....I said I was not ever notified....she said well that doesn't matter...it is too late to turn in any evidence for your side because it has to be submitted at least 5 days before a hearing.....I had the hearing and brought this up and the administrator told me she would extend the hearing until 9/19 at 1pm.....I cannot find any help....I cannot do this alone.....do any of you know any attorneys or groups that could help me? I have contacted a lot more than what I list....the KY Bar Assoc said they would refer me to Legal Aid.....they also told me to go to their site and filter on Government Lawyers to find someone. I called several...they either stated they work for private organizations and don't handle outside cases....or there is 'no way with such a short amount of time they can review the hundreds of pages of evidence I have'....etc.....medications (for the triple coag therapy) I am not able to afford. They are on the Medicaid formulary but I cannot get them because an out of state provider prescribed them....as an example...I am supposed to be taking Eliqis but the cost even with Good RX is $650 per month....that is FAR OUTSIDE of my budget.....I am presently paying for Cromolyn Sodium, Presagruel, Three Supplements, etc.....and more out of pocket and that means I have to take the money away from the food budget I have for me and my child.....we get $13 per month for SNAP for the two of us together.....that isn't right because no medical expenses are being deducted. I need a kick butt attorney that is familiar with this type of case.....there are literally scores of violations of federal and state laws.....but I just get squashed when I try to talk to people because they know I can't fight back too hard because I am disabled.