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Im so tired of this.
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Before I go to far, I should say that overall I am okay and safe. I see a counselor on the reg and will meet with them tomorrow, but today has just been overwhelming and I am stuck between wanting. To cry for hours or scream for hours.

Like most of us here I am dealing with long COVID and it is draining on many levels. I got COVID very early (Feb 2020), before testing was even available. I donā€™t know when exactly I got it, but this is the best timeframe my doctors can agree on.

Before COVID I was okay. I had severe asthma since childhood, things have gotten exceptionally worse. I went from having an asthma attack/flair up on average once a month (most often mild) to having them several times a day.

COVID killed my right lung. The only thing remaining are calcified deposits in my esophagus and right lung. I violently cough all day long - to the point of causing extremely harsh headaches/migraines, lightheaded/feeling like Iā€™m going to pass out, or lose control of my bladder. I wheeze all the time (nearly constantly); people can hear it and comment on it. Breathing issues wake me(and my partner) up at night. I was referred to Mayo for consultation, but was not making enough money at the time to afford that and then moved so far away from Mayo that itā€™s not even feasible for me to go there now.

I canā€™t breathe. I canā€™t do things I normally did before. Walking more than 20 feet causes a violent attack and breathing issues. As a result, I am so much less active than I used to be and have gained a lot of weight.

Since I got sick I have had to make 2 very large moves for over (3k miles for the first and 1600 miles for the second). I am now in a very rural area of the country with limited medical services and cannot find a doctor to help. The local doctors either tell me Iā€™m making things up, that they donā€™t want to deal with long COVID, or as two of them said ā€œthere is no long COVIDā€.

I am just drowning in this. Some days are too much and I have those horrible thoughts cross my mind - to reiterate, I am safe and do not have any plans or serious thoughts in place.

I just donā€™t know how to continue on for years like this. I am in my mid-30s and physically feel like Iā€™m over 100, and when the brain fog hits hard I feel like I have dementia.

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Posted
1 year ago