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Newly diagnosed - hopeless 😩
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My story sounds typical but I also can’t believe it. I had what I thought was a UTI a month ago. Healthcare is hard to get here to o consulted a telehealth doc and got a rx for macrobid. My symptoms seemed to get better, but as soon as I stopped it, they came back. I repeated this again. I could not get a urine test because my doc was on vacation.

After ANOTHER round of antibiotics my symptoms came back in full force- mainly, constant urethra burning. Some bladder pain. I ended up in the ER where they tested my urine and said nothing was wrong.

I was sent home and ended up going back 24 hrs later, and sat in a chair for 15 hrs waiting to see a dr. Again, urine and blood tested, fine. This time I got a pelvic ultrasound, a CT scan, and vaginal swabs.

The consensus was again that I have IC.

I’m having a really hard time accepting this. I am a healthy 36 year old woman with a busy life.

I have been taking toradol for pain, and Detrol (it’s only been a week) and bladder spasm med Buscopram.

I am following the IC diet as closely as I can, I had a few hours of normalcy on a couple of days but that’s it.

Will any of these treatments eventually pay off???? Has it not been long enough (diagnosed a week ago)

Any support or guidance is really appreciated 😥

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2 years ago