This post has been de-listed
It is no longer included in search results and normal feeds (front page, hot posts, subreddit posts, etc). It remains visible only via the author's post history.
hi... i got a diagonsis and then an mri recently and i just. i have so many questions bc ive had symptoms of many different disorders/problems. and im also just very frustrated and depressed and tired and am looking for advice :( sorry this is so long, i continue the post in the comments cos it got too long ahah. im posting an mri i got recently here that i talk about in the comments:
so ive been suffering with bladder/pelvic/urinary issues for almost 4 years now (summer 2018 when it started). it basically started with very bad UTI symptoms, the frequency/urgency/burning etc... im sure a lot of us are familiar with that :/ i had a job at the time i started noticing the problems, a job that required me standing up all day in the hot sun, and it made it a living nightmare that i couldnt go to the bathroom for very long or very often, i ended up having to quit. i went to the doctor multiple times over the next few years to try to solve it, multipleee pap smears (which were embarassing af. i probably had like 10 within the span of a year). ive had recurrent UTIs and other issues (like BV) some times and other times ive had no infection at all, but the pain is always there regardless. to me it feels less like a 'knives when i pee' thing and more of a 'the area near my bladder/vag constantly feels full' kind of feeling.. which is so annoying cos it doesnt go away whether i go to the bathroom or not and its hard to ignore, its driven me crazy.
i tried many things to try to get it to stop - not taking baths, heating pads etc etc. its gotten to the point of affecting my sleep as well (cos i keep having to get up like a million times a night to go to the bathroom and therefore just couldnt fall asleep at all some nights). so i had to learn to sleep with my leg/knee propped to my stomach and my legs like... spread while i sleep on my side to ignore my pain long enough to fall asleep. the past few years its felt like its just gotten worse by the day but ive tried to deal with the pain bc i nor my family has a lot of money and i just entered college in 2019. so i tried just living with it. nobody really believed my pain was that bad either - i even had my mom accuse me multiple times of exaggerating or faking so i could get out of school or something. i also have autism so she thinks im just more sensitive to pain in general, and that my autism was making me 'overreact'. it really has been hard tho - its even made school rlly difficult too, cos i have to rush to use the bathroom multiple times in a hour and stuff.
in late 2020 i was in a gaming discord and i was just kinda ranting about my health issues to some of the others. and one of the others in the server was a mother who's been through some health issues before. and she basically suggested me going to the gyn and getting an ultrasound. so i did and the gyn ended up finding an ovarian cyst, one that was apparently the size of like a lemon or so. and so i was finally relieved like 'ok i can solve this'. so i got a laparoscopy to get it removed. i thought getting the cyst removed would be the end of it. only.. my pain didnt go away. it was like the surgery did nothing at all. so i was rlly frustrated but at the follow up the surgeon basically was like 'you should wait for ur body to heal, you just had surgery' and all so i was like ugh fine and tried to wait. then that turned into months and months and my pain wasnt going away. if anything, it was getting worse. (1/3)
Subreddit
Post Details
- Posted
- 3 years ago
- Reddit URL
- View post on reddit.com
- External URL
- reddit.com/r/Interstitia...