New here. Hope I follow all the rules.

Long story short is that I have been trying to figure out what's going on with my hormones for years now. I had severe cystic acne for 12 years, and it didn't improve until I took Accutane twice in addition to 2 years of Spironolactone. I still deal with extensive scalp hair loss, weight gain, hirsutism, and body hair in additional places it shouldn't be.

Sounds like PCOS, right? Hold on, though. I've never had cysts in my ovaries, my periods have always been reasonably tolerable (not out-of-control heavy or unbearably painful), and I have never ever had blood sugar issues (and yes, I've had my A1C tested, too). I've had the same battery of blood tests done at various points in a given menstrual cycle, and nothing is ever too high or too low. Even when you account for the variations in PCOS symptoms, something doesn't quite seem right. I've even talked to friends who have PCOS, and I honestly can't fully relate to them.

My first endocrinologist just ordered the same battery of tests (see above) over and over again, and nothing ever changed. She wasn't completely sold on the idea of PCOS, but prescribed Spironolactone at my insistence, after telling her that birth control never helped me. I upped the dose slowly, and I have now been on 100 mg for about a month or so, maybe a little more. Scalp hair regrowth has been . . . kind of lackluster.

So then I tried a second endocrinologist. She was also hesitant to diagnose me with PCOS. The testosterone total result was higher than she liked to see, but she still wasn't convinced. Instead, she kept saying it's a "PCOS-like syndrome," and that I'm having "PCOS-type symptoms." She added a low dose of Metformin, only to give the Spironolactone a boost (again, my blood sugar is fine). She also tested me for a few new things.

Everything was normal, save for a few things. The cholesterol was just slightly higher than the upper limit, but it's always been like that, even as a kid. I'm talking maybe 3 to 5 points too high. And I don't eat fast food, drink soda, or eat a lot of greasy foods.

But the big thing is that my Vitamin D levels are at a whopping 7L. Yes, SEVEN. The minimum is 30L. I go outside every day to feed the cats, and I do have milk and cheese in my diet. I'm not perfect about it, but that seems a little low, even for me.

So my thought is this . . . could it be Hashimoto's? I have two other autoimmune issues, if that helps at all (vitiligo and psoriasis.) I'm not exactly thrilled about all these hormone issues, but i don't want another dead end, either. And I don't want this to somehow be my fault. Just . . . ugh.

I don't have another follow-up visit with my endocrinologist for another 6 months. I will send her a message in the patient portal, but in the meantime, I'd love some input from all of you lovely people.

Thanks, and sorry for such a long post!

TLDR: I have a few symptoms of PCOS, but it's not quite PCOS. My Vitamin D levels are insanely low. Hashimoto's?

*UPDATE*: I was so distracted by my Vitamin D levels that I didn't notice all the normal thyroid levels. Thyroid peroxidase antibodies, DHEA sulfate, T4 Free, TSH, and T3 Free were all very normal. Does that add anything to the discussion?

*UPDATE #2:* I just got even more test results just now. I just checked, and apparently something called my thyroid stimulating immunoglobulin are . . . low? And for some reason, this result was by itself (no other test results showed up with it) and it came with some kind of report talking about Graves disease!? What is happening?