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Having a flare, can't stand people's "concern"
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Basically what it says in the title.

I'm having a really bad flare and any time I managed to drag myself to any sort of event, be it an in-person class, the shops for some essentials, or even just walking past my neighbours on my way into my flat, I can see the pity on people's faces. I can see their concern. And honestly, it's starting to really annoy me.

Even people who have known for years that I have a long-term health condition when they see me with my walker or my walking stick the question is invariably, "What happened?" It was fine at first but the longer this flare has gone on the less patience I have for it. Lately I felt like screaming at people, "Nothing happened, have you never seen a cripple like me before?!"

I know people mean well. I know they're just worried about me and don't like seeing me in pain. But the thing is, I'm dealing with enough right now with the pain, fatigue, and depression that comes with this condition. When people look that concerned I am made to feel bad for making them worry. I feel like I should be doing something to assuage their worry. This is week four of this current flare. My patience has run dry and I don't want to have to be doing emotional labour to make other people feel better about my pain when I can't even make myself feel better.

I would never scream at people for this but it is making me want to scream. It's not like me to be that rude especially not a people who care about me but I feel like I'm at the end of my tether It's not like me to be that rude especially not a people who care about me but I feel like I'm at the end of my tether. I've been with my fiancee for 7 years engaged the last 2, and this is the 1st time he has seen a flare this bad last for this long. I think it's scared him a little and I vented to him was a bit of a shock to see me in this bad of a state he also just keeps telling me to "beat the feelings of frustration down".

I'm just venting, really full stup I would kind of love to have a sign I could just hold up saying I'm crippled it's nothing new stop asking questions I'm just venting, really. I just kind of want to have a sign I could hold up saying, "I'm crippled, it's nothing new, stop asking questions I don't have energy to deal with."

My rheumatologist is going to try get me back into the inpatient physiotherapy program in my local hospice, because that was very useful before. In the meantime has anyone else in this wonderful group dealt with failings like this? How did you deal with them, do you have any advice please? Fibromyalgia has already taken so much for me, I really don't want it to end up taking friendships and relationships from me just because it's infuriating me so much with how unfair it is.

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2 years ago