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Hello every one! I'm having a bad day with tremors, to the point that it caused me to cry a bit at work after how bad of a day it is.

Im nearly 26 years old trans woman (assigned Male at birth, but I'm definitely a woman), and have been dealing with ET since I was 14 years old. There's zero family history. I had a DBS implanted when I was 17, nearly 18, and had it replaced at almost 22. I'm getting it replaced again, although I just set up an appointment with my neurologist so I can get the ball rolling.

Today while I as at work my tremors got worse for no discernable reason. I have tremors in my arms, hands, legs, torso, head, and vocal chords. Most of the time it's not noticeable because of my DBS, although the scar is pretty bad (the surgeon didn't think I needed the scar reduced even though it's a full 2 inches long and 1 inch wide on the left side of my chest above what is now my boob). Can't really fault them for not understanding why it was so important for me to have them reduce the scarring before but hopefully they will now.

Usually when they get bad its minor shaking that I can hide by crossing my arms, or making my hands travel across my body for stability. Today I just had to move fast, but I could tell that customers wanted to ask me why a woman in her 20's is shaking so damn badly. Thankfully no one did. But I did get sent home early because management could tell I was struggling.

Hopefully tomorrow brings a better day of self control.

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6 years ago