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I have scheduled for inpatient epilepsy monitoring towards the end of the month, and have some questions on what I should expect
This is “phase one”
I have drug resistant epilepsy, with several presentations.
The info sheet says they will lower medications. The doctor said they want to catch all 4 presentations (surgery candidate)
Currently I’m on 3000 mg of Keppra, as well as a couple benzodiazepines.
The only way I can think that they will be able to capture anything is to discontinue keppra and benzos, which doesn’t match up with “reduce medication”
Even then, seizures can be unpredictable off meds, due to years in the ketogenic diet.
Not sure how they would reduce seizure threshold low enough to capture all four- and honestly the tonic clonic variety is a trauma trigger- as I tend to resin partial awareness during, and have full memory of mixed and matched memories, seared into my mind after.
So- what can I expect, is there an escalation protocol? They expect the stay to last 4-5 days, but possible longer.
From what I understand it’s just a scalp monitoring cap and scalp electrodes have proved to be difficult at picking up at least two different variations previously.
What happens if after 5-7 days they still have not been able to capture some/all? Do they extend the stay, schedule for brain stimulation? Any advice and insight I’d appreciated, thanks!
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