Hello, my name is Alex. I'm 33. I have been having these crazy, random, involuntary jerks for about 6 months. Sometimes, when I'm walking down a hallway, my body will throw itself into the wall. One time, I was holding my 2 year old daughter. I was sitting in front of a wall. All of a sudden, I jerked both of us into the wall. I felt like a monster. About 24 hours ago, I was holding my phone with my left hand & all of a sudden, my left arm jerked so hard that my phone nearly went flying across the room. I can't control it at all.

I finally decided to do some research bc I began to think that this can't be normal. I just googled my symptoms & that's how I discovered Myoclonus. I read the symptoms & I'm now 99% certain I have it. The symptoms are spot on.

I have an appointment with my PCP today. I plan on telling her about what's been going on with me for the past few months. Will she send me to an expert for testing? I think that's how these things usually work. What should I expect?

I also researched what kind of medication is used to treat Myoclonus. I saw that Klonopin is the most common drug. Is that true? I used to be on Ativan for my anxiety, but I forgot to reschedule an appointment one day & ended up losing my prescriber.

I am currently on Methadone bc of my past opiate addiction. I have been clean for 5 years & every month, I decrease my dose by 2 MG, so I'm in the process of coming off of Methadone.

As soon as I saw that Klonopin was commonly used to treat Myoclonus, I became very worried. I've experienced doctors who just don't trust me bc of my past & bc I'm on Methadone. Is anyone else here also an addict &/or on Methadone? How did the doctor treat you? What medicine did you get? I'd be very, very interested in hearing your story.

I'm really concerned with what's happening to me. I am scared to drive & I'm scared to hold my child. I'm terrified of not being taken seriously. I hope someone can give me some insight & ease my anxiety a little. Thank you so much.

PS - My father passed away in 2014, but he has Epilepsy. Can that be the reason why I may have Myoclonus? Does this type of thing run in families?