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I have likely intractable focal epilepsy with multiple types of seizures. So far I’ve had one nocturnal seizure. Lots of sharps and slowing. The neurologist said, “you have the sparks there very often, but they haven’t ignited.” They pulled me off my Xcopri and immediately started lowering all my meds when I got here. She asked if I have any other triggers and I told her all I’ve got is stress I think and according to my past EEGs hyperventilating. I make it a point to avoid triggers like drinking and sleep deprivation. My last TC was while I was watching a movie and the one before that I was getting pants out of my dryer so I can’t exactly trigger it. It’s a little frustrating sitting here with my head wrapped, all the EKG things on and nothing happening so far. I won’t lie.
For anyone going into the EMU - if any shows or movies are coming out save them to watch. Thank god I did that for my sleep deprivation last night. But you also have a lot of time to pass. Bring snacks and I packed shelf stable coffee bc hospital coffee is yuck. I was worried about staying up for sleep deprivation, but every time I started nodding off the EMU tech popped in and woke me up so don’t worry about that.
Feel free to ask questions! I had a ton before I got here lol
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