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As of the fall of 2018 I was diagnosed with epilepsy when my family started to notice absence seizure events. I have gone through several different seizure medication trials but have had both tonic-clonic and absence seizures (loss of consciousness and fully aware) that have continued no matter what I have tried. My medications have been through both the pretty normal anti-convulsant list and a couple of benzodiazepine meds without much change of frequency of any type of seizures. Based on my MRI, EEG and WADA testing my results show that my doctor suspects mesial temporal sclerosis but I don't see anything really confirming this. I was mostly seizure free my entire life except for a grand mal I had when I was 2 or 3 and a petit mal when I was like 7. (I had a benign brain tumor removed at 11 months old but not sure if thats been related at all).
Since my medication trails have been a long list and it seems like none have changed my event frequency I feel lost for how to continue my care. I was getting well accommodated at my job but with how things were going and my sleep getting impacted majorly I have also recently put my 2 weeks notice into my job. My anxiety over it all has been a really debilitating battle for me even though I am trying to cope with some healthy habits of watching my diet, staying active, meditating, and a few hobbies I like. I dont know if I'd want to try something like vegus nerve stimulation and am curious about if thermal ablation surgery is worth pushing my doctor toward looking into.
With this coming back after having seizures as a kid, losing my independence to drive and it impacting all of my relationships and career now, I am just feeling lost and uneasy about how to move forward.
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- 3 years ago
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