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Some background, but feel free to skip.
I was diagnosed at 15, having simple and complex partial seizures. We found I was also having tonic-clonic seizures in my sleep when I was about 20. A visit to the Cleveland Clinic EMU said I was not a candidate for surgery. (I was not happy). At about 27 we were winning the battle and I was able to get a driver’s license for around a year, then I had five seizure in one day. The war got worse.
At around 33 I was having mostly complex partial seizure, about one every other week, and the Oxtellar I was on screwed with my vision. I went through the EMU testing again, and they couldn’t agree if they should recommend me for a laser ablation surgery, so they let me decide. I said yes, but my insurance said no.
Anyway, so Thursday I have an open resection. They’ll be throwing away some bad chunks of brain and my left hippocampus. My understanding is that the left hippocampus is involved in things like memories and word recall, both of which I already have trouble with. If it cuts down on my seizures I’ll call it a victory.
Just wanted to share my story, but also see if anyone has any advice for afterwards; I’m not to worried about the surgery, more the recovery process.
Edit: And the main question I haven't found an answer to yet. I've been told I may not be able to open my mouth or chew at first, so what do I eat since I'm pretty sure jello won't be filling?
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