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I suffered a traumatic brain injury around 5 years ago which left me with epilepsy, I started on Keppra but became severely anorexic and switched to lamotrigine which kept me seizure free for years. I'm 40F.
Unfortunately, my seizures have returned, which I discovered very embarrassingly when I met my partners friends at a party and had two grand mal seizures in their kitchen. This also happened the night before I met my partners kids for the first time. The epilepsy team in my NHS district upped my medication and switched some of my daily medications for lower risk ones, but I'm really scared of it happening again. I saw my NHS neurologist a month after the seizures returned and told them the circumstances of the seizures but they didn't really take much notice and just told me about the medication changes.
It seems clear to me that my anxiety and stress over these two important events probably triggered the seizures but I don't know where to go from here. I'm in the UK and have private insurance through work which has already approved a consultation/scan but I don't know if a neurologist will actually do anything to try to help when I know I'm especially anxious, or whether I need to seek help elsewhere. I don't suffer from depression or any other mental health issues, but obviously I am worried about this happening again, especially at important events, which becomes a self fulfilling prophecy.
My partner was genuinely traumatised by witnessing my seizures and seeing me stop breathing when he could do nothing but hold me on the floor. My neurologist mentioned midalozam as a rescue medication but said that training would be needed for it? I've looked into it myself and it seems that you can get injectable or buccal tablets of midalozam and I wouldn't have thought that buccal tablets needed training.
Does anyone have any experience with stress triggers and how to manage them, or can share experiences using midalozam? Thank you.
Edit: I work from home/remote only 18hrs a week down from 40hrs and although my job is stressful I enjoy it so I don't think it's a factor.
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