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30
8 months post-hysterectomy and Endo removal at age 21. Woke up this morning screaming in pain.
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Essentially what the title says. I had a hysterectomy at 21 for Adenomyosis, which has provided immense relief, and yet another Endo removal surgery simultaneously. Unfortunately, I learned that my surgeon ablated the Endo, all of which grew on nerves attached to my back on my right side.

When I woke up this morning, I could feel the stabbing, pumpkin carving-like sensation on the right side of my pelvis and lower back; I know my Endo has grown back.

As I sit here crying, h!gh on πŸƒ, I find that two truth exist. I am so thankful that I had my hysterectomy, as Adeno was a massive pain generator for me and the hysterectomy provided immense relief; I don’t regret it in the slightest. At the same time, even though I knew that there was no cure for Endo, I am devastated that I may be doomed to a lifetime of pain despite drastic measures.

I’ve tried PT, surgery, pain management, hormones, etc. all to no avail. My next step is reaching out to an excision specialist and getting back to using my mobility aids.

Rant over.

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4 months ago