I have cervical dystonia and my most recent flare-up is getting to me.

It’s effecting every aspect of my life. Having had this for 20 years, I thought things would be easier by now. That I would have better treatment other than diazepam and cannabis. That more doctors would know about it

It honestly didn’t dawn on me how rare this is until my doctor shrugged his shoulders after having to use google to know what I’m talking about, then pushing a prescription my way.

It’s just making me a bit frustrated and depressed. It’s getting in the way of how I sleep, how I usually go about my day, how I draw or cycle. I’ve been stuck in bed for a few hours because it is too painful to get up and I don’t want to twitch and end up being in even more pain.

Having a subreddit for dystonia is extremely helpful. Knowing that I’m not alone, that there’s others like me in here. Very thankful.

Much love to whoever reads this. Stay safe.