Cyst Question - TIA

Good morning friends,

I appreciate you reading my question. Your time is a gift, and the fact that you’re using it on reading this really means a lot.

My question is if I can ask for information, guidance, support, or knowledge on/ about if anyone might know about a tissue mass, I got removed from my back or able to share similar experiences.

The medical code and diagnosis was: L72.8 or 201294000 (SNOMED) Follicular cyst of skin and subcutaneous tissue (disorder).

I have had this mass on my back since at least 2021 until I got it removed this week.

To describe it’s characteristics: It was towards the middle-right ish area of my back 1.6cm, much larger than they expected it to be upon incision, doctors mentioned “it just keeps tunneling” and said “they had more than enough tissue for the biopsy” and some of it was discarded. They said that the amount of tissue would cause skin to concave to some extent so they used a “Mattress suture” It was larger under the skin than it seemed to be from where the bump was.

The tissue seemed like skin from what I saw, no pus, blood, sebum, other liquid, or air was inside of it to my knowledge. I’ve had several doctors look at it over the years, as well as other people weighing in with their opinions. A friend told me they assumed it needed to be drained, one doctor said it would be something they could “pop out”, and another doctor said it was “concerning how hard it was”. I was able to feel it once, and it was not rock hard, but definitely not super malleable. It stayed in the same place, but I never know what they mean by “moveable”. I remember it being slightly sore after someone touched it too much. Another strange thing - my doctor said there was a decent amount of scar tissue within the area/cyst/mass, and asked me if I had ever popped it. I had not, there was never a head to it that I could see. It also lasted for years, and I have read that cysts usually drain and/or go away and come back, and this never went away, it only stayed and grew slightly over time. If I am correct in my comprehension, all of that information, makes it a tumor and not a cyst, right? A cyst seems to have different characteristics from my understanding, but I also understand that the terms are used interchangeably sometimes.

It was never painful up until this year when it caused some aching in my back due to the displacement of tissues (I’m assuming?) but the mass itself never hurt. It was also never red, puffy, inflamed, itchy, or painful. I barely noticed it to be honest. It matched the exact tone of my skin. I found out that I had it from a dermatology visit.

Anyways- I also have PCOS, and Florid Cemento Osseous Dysplasia, and have had a lot of inflammation, pain, and health issues in the last few years.

Intense and wide spread rashes, tachycardia, high blood pressure, dizziness, weakness, super fast heartbeat, fatigue, amenhorrea, major emergency menorrhagia following years of amenhorrea (it’s not safe to not have your periods for more than 3 months y’all!), anemic due to blood loss from the month long menorrhagia, intense scary panic inducing rash that only prednisone made any difference to… and I’m probably forgetting several other things.

I got a LOT a LOT a LOT of testing done, and there was never an official cause of the rashes. However I did get a Mirena IUD to treat my PCOS & amenhorrea, started taking Ozempic, metformin, Wellbutrin, Vyvanse, and folic acid (MTHFR gene mutation) They found rare polychromasia, and basophillic stippling as well as much of my cbc being super off, and very high inflammation, but I had just had a biopsy for my Florid Cemento Osseous Dysplasia too, so that plus heavy blood loss made sense. Many of my levels went back to normal after that.

It got really bad late 2022 into early 2023. I have been feeling a lot better since about mid this year, though not nearly all the way better. It’s a manageable-new-normal, this isn’t the hellish suffering that early 2023 was, but I am doing okay-ish now.

Oh I also forgot to mention: I had an atypical Clark’s Nevus taken off my arm this year, and wonder about this too. (2.5 on the 1-10 scale of melanoma, 10 being melanoma, and had a wide local excision)

I write all of that to say, does this possibly sound like some of it can be related? Also, is the systemic and widespread other health issues related? Could this be a syndrome, disease, or condition that I am not aware of yet?

Does this cyst I just had removed sound more like a tumor? Does anyone have experience with lipoma, or liposarcoma, or basal cell?

My dad has squamous cell carcinoma, but I did not think that was hereditary?