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Okay guys I have to come clean the next step is to come clean to my doctor but my next doctor's appointment is not until next month.
This goes back all the way to the second half of October of 2022, at the time my mother just had a car wreck to where she was t-boned needed to be hospitalized for about half a day but this is unrelated to my treatments so I won't go into detail.
Anyways I was so stressed out about it that I stopped taking my treatments except for my Trikafta treatment, anyways about after about 30 days I came clean to her about it promising to start doing them regularly again (1 to 2 times a day, which is my regular).
Anyways I fell back into what I was doing for the previous 30 days which was not doing it at all, but I'm continuing to try to at least do it once a day but it could possibly be weeks before even get the urge to do it wanting to be independent at all but like most humans I just fall into old habits.
Anyways I realized something. I just had my yearly chest x-ray done back in January and my lung function was normal for me, my pfts are at my baseline of 70-75.
I just saw that someone posted an article suggesting that people might actually not have to do breathing treatments like saline, Pulmozyme, or Tobi when they're on Trikafta, but I'm not wanting to do anything without consulting my doctor first which I'm planning to do next month until then I'm going to try to at least do my breathing treatments once a day.
Anyways I'm not looking for anybody's sympathy, dressing down, or anything, I'm just wanting to come clean in the only environment I'm comfortable discussing this in outside of my doctor's office.
TLDR: Stopped doing my breathing treatments regularly for the last year and a half, and lung function is completely fine and didn't get nuked like I feared.
Edit: I know I should have came out immediately but I was just afraid and embarrassed that my doctors would get pissed off at me.
So you’re not doing vest anymore?
I’d just come clean to your dr and get it over with. They need to know what you’re doing at home.
Side note, I’m shocked you’re still doing so well after skipping treatments. I was always under the impression that skipping treatments is life threatening
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Well I’m glad it’s helped alot. But please tell your doctor. I’m sure they’ll be unhappy or judge, but that’s their business, not yours. Your business is staying healthy