Hello, 29F, and new to this. Not officially diagnosed but I’ve been to the ER twice in the last 7 months due to irregular bowel movements, really bad abdominal pain, and just feeling like crap.

Last ER visit was two weeks ago and I had a lot inflammation in my small intestine and colon. It was nice to have two CT scans to compare to each other from my two visits that showed that my inflammation has only progressed in the last few months. I was prescribed prednisone and pantoprazole by the ER doctor and it seemed to help with all my symptoms after about a week in. I still have pain and urgency to go the bathroom but it’s not as bad it was so I can handle it. The ER doctor referred me to a GI doctor and I saw them today.

I will be having a colonoscopy in November probably near my birthday. The GI doctor obviously didn’t diagnose anything for certain but he told me he suspected it was early onset Crohn’s, which was also what the ER doctor suspected as well.

I’m not sure what my purpose of posting here is. I guess I am feeling overwhelmed as this all seems to be coming on suddenly. I’m feeling a little alone as friends don’t fully understand what I’ve been dealing with. Neither do I! My parents are a stressors as they are worried about me and keep asking questions that I don’t know the answer to. Work is embarrassing as I’m sometimes running to the bathroom as soon I get there in the morning.

I’m posting because November feels like a good distance away and honestly I’m worried about what happens when I run out of medication that ER doctor gave me and I potentially feel like crap again. Which I know, I’ll just see a doctor then!

But I guess what I’m hoping from this community is any advice or tips on the overall process. Or even just tips on food that doesn’t make your stomach hate you immediately afterwards 😅

Either way, thanks for reading.