So I have crohns disease, and i've had a ROUGH time since I was diagnosed at 15 in 2015. I've failed multiple medications, i've had a toxicity due to a medication and almost died and was hospitalized. Recently we found a medication that on paper seems to recude my inflammation, BUT my symptoms are AS BAD, and i've had new symptoms appear, which I HAVE NO IDEA if are related to crohns because I'm not a doctor. I have a rheum who does NOTHING and tests for nothing because he's a bad doctor but that's another story, I saw a doctor in ER who couldn't believe at the suboptimal care he has given me so now i'm waiting for a new rheum but in the meantime all I have is my GI. All this to say is this morning I told her (my GI) about how bad I am, I have these new symtpoms :

-INTENSE joint pain lower back pain

-INTENSE fatigue / exhaustion, I nap multiple times a day

-weakness in my body

-rashes on eyelids / face inflammation redness/ rashes on neck

-memory fog memory loss

-mouth sores

-fievres on and off (none since december though)

-tremors in hands

• PLUS the intense crohns symptoms : a lot of diarrhea and leg pain that comes with it intense stomach pain and burns and shiver spells due to inimaginable amounts of pain & dehydastion & dizziness & nausea

I have no life quality, I can go out once a week and I need a week to recover. I asked her if she could perhaps sign a paper for my insurance to cover a wheelchair until I am better so it could help me manage my energy and have a better quality of life in the meantime of having help and she said "I don't understand your results are better, you're 24 you don't need a wheelchair, you have great days so I don't understand" first of all great days what where when how? Not true, I have "ok" days SOMETIMES, doesn't mean I am super good?!? She was SO rude and kept making me feel like I was exaggerating, I started crying, like I just want help and if you can't help me refer me to someone PLEASE and she did nothing as if I was fine. I see generalists they tell me to go to my specialists, my specialists tell me to go to a generalist to figure out whats wrong they keep relaying the ball to each other, in the meantime I'm stuck in the four walls of my apartment lonely, exhausted and in pain.