I am still getting tested to see if I have lupus or drug induced lupus. I came off Remicade thinking it was drug induced (I also had high antibodies) and thought the joint pain and neuropathy would subside… It did for awhile! However…

It’s been about six months of Stelara now and I am flaring. Frequent BMs, painful, intestinal pain, diarrhea and now I'm also experiencing neuropathy in my hands and feet. My joints are swollen and burn. So I think I may not have drug induced lupus… I think it may be SLE…. I’ll let my rheumatologist verify before I freak out about it.

I had pain meds prescribed by my primary care physician for awhile, but I made a mistake and told her things were getting better and I didnt need them. Once I have all my blood results back, I’ll talk with her about getting my pain under control.

I noticed though, Ambien has really helped my pain. Isn’t that weird?!? Ambien is a sleep med, I don’t know why it would help with pain relief! I am glad I have it to help get me to sleep at least.

Todays going to be a day in the bathtub for me! Anyone else hate taking a bath and then needing to get out to use the toilet four times? LOL

And anyone else here have both Crohn’s and Lupus?!?!