I had to change from Remicade to Stelara, because Remicade was DESTROYING my liver and also gave me drug induced lupus. The lupus symptoms were terrible, but had almost no Crohn’s symptoms (digestion was amazing). I was in remission for three years. Gained back the pounds I lost.

Now that I’ve been on Stelara for a bit, since last July I believe, I am having diarrhea almost everyday and my terminal ileum pain has come back. It feels like a knife is being shoved into my lower right quadrant. It’s a familiar feeling, I haven’t had this issue since I started Remicade.

I love how easy it is to use Stelara and my lupus symptoms have subsided. I am so sad I am going through this pain again.

I’ve been on Remicade, Humira, oral meds (prednisone and budesonide) now I think I am failing Stelara. I am pretty young…. What’s next?! 😣😣😣

My partner has Crohn’s too and had a bowel resection. He has minimal symptoms now. I wonder if that is something I need to consider… He was bad, had perforated intestines and insane inflammation.

I just have inflammation and ONE ULCER! ONE!! Which causes stricturing. But my symptoms have always been worse than his.

What a weird disease. I don’t know what this post was about, I just wanted to vent.