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I've been struggling with my health since I can remember. I have Nutcracker Syndrome, Pelvic congestion syndrome, PCOS, Endometriosis, and a very weak immune system. Every day is a battle with debilitating pain. I've now had 17 surgeries at 22 years old. 9 of which have been in the last year, 3 of which have been full open surgeries. I feel like I have no quality of life right now... I cannot work, I can't be active and hike, dance or do any of the fun things I used to. I don't have the energy to make art or sing anymore.... I just want to be healthy. I'd think 17 surgeries later, and so many compications I'd be on the road to recovery, but it never seems to end. I racted badly for a medication called Orilissa for my Endo, it made me incredibly ill and I was in the RR last night. During CT scan they also found I have a lot of blood clotting in my recently made renal vein bypass, as well as gastric fundal varices.... with my weakened immune system I've also been fighting some type of virus that caused all these painful bumps in the back of my throat.
I feel lost. I'm terrified, I want to be healthy and actually live for once. I feel very alone, no one seems to understand chronic illness and friends are impossible to keep....
Just needed fo rant and hoping to feel a sense of community or comfort even from this...
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- 2 years ago
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