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18, black cis woman. I was diagnosed with fibromyalgia last month. before that I had diagnoses of functional abdominal pain/syndrome and vasovagal syncope (but neither satisfied ALL of my issues). I have pain that encompasses multiple systems. GI, muscles, nerves (I think), bones, I get headaches, migraine, weakness, fatigue, fluctuating weight, Im prone to feeling faint, dizzy, lightheaded, get exhausted easily, heart palpitations, etc. I hear that fibriomyalgia can have 200 unique symptoms but something in my gut is telling me I might have something else or a comorbid issue at least
for one, my pain tends to start in one area of my body, then go away and come back somewhere else. or radiate. like in one bad episode, my foot hurt like shit for two weeks and eventually moved up to my legs and hips and caused an inability to walk/awkward gait. which I'm now struggling with more frequently. that's another thing, I been sick for years but it's been pretty intermittment for the most part, at least over time. but after going on gabapentin and amitriptyline last month, I'm honestly feeling more sick more frequently than I did before. best medication I was on was omeprazole for a month in 2021. I feel like I'm "giving" myself fibromyalgia more than actually having it tbh. alot of the symptoms and how they manifest in the disorder truly speak to me. but I still feel like it's something else/more. also, my body looks weird when I get sick sometimes. sometimes it looks like like my limbs/bones are disconnected, have inverted or are about to pop out. but it comes and goes. I also dont really relate to that "constant dull ache feeling" either. I feel like my pain comes and goes and can either feel sharp, shooting, stabbing, dull, radiating, etc. but sometimes it lasts a while.
alot of times when I look up symptoms, they redirect to some arthritis/osteo issue. my new doctor is more validating than any other one I've had and cares, but I'm scared to tell him my doubts and my wants for myself. he implied that my brain fog/spacing out might mostly be "fibrio fog" and ""could be psychological too"", when I've been struggling with dissociation, post trauma stress, anxiety for years too. then when I told him it sometimes feels like my heart stops, he was like "well that's impossible or else you'd yknow die". he's kind but pretty...confident at the same time. all that extensive blood work he gave me all came back negative/normal. but I want more tests. I want at least an x-ray, I want to see a rheumatologist, maybe even a neurologist. I feel it in my bones. I think something's wrong with my bones. I think I may have POTS and a GI disorder too. but I don't know how to advocate for myself. I been advocating for myself and screaming for help for years and I wanna give up. maybe I'm ignorant about the condition and nothing else is actually wrong with me, but I can't shake the feeling. especially given that all my symptoms popped up at different times in my life (headaches/migraine at 11, GI issues at 14, muscle/skeletal pain at 16/17) idk
this morning, I woke up in so much pain. my entire body feels dull, weak, achy and sore. my stomach is killing me, I'm scared to eat anything. I just want to sob and melt away because of the pain. I can't take it, tell me what to do please this subreddit is all I have sometimes
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- 4 months ago
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