Y’all, I feel at a loss. I deal with symptoms on a daily basis, but not always the same ones every single day. I was diagnosed over a decade ago with POTS, but I feel like that’s either a misdiagnosis or that it’s only part of it. I feel like I’m constantly calling my PCP or making an appointment to discuss a new symptom before we even fully figured out the last one. No abnormal test results so far, although we haven’t really done much testing.

So every single day, I deal with fatigue. But then the other symptoms vary: sinus-like pressure headache (but no sinusitis per a CT scan), nausea, abdominal pain, diarrhea, brain fog/difficulty thinking/remembering things, fever, post-nasal drainage, cough, easily short of breath with minor things…….not sure if that’s all, but that’s what comes to mind right now.

What am I missing? I’m going to the doctor and she believes me and wants to help, but I think she’s at a loss and doesn’t fully know what to do with me. I kinda want to give up and just pretend I’m fine, but that’s not going so well anymore. How did y’all navigate the road to a diagnosis and treatment?