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My doc has given up and said I need to go to the Mayo clinic
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Hi everyone, I’ve posted a few times before, but this is a quick recap. I’ve been sick for 5 years Symptoms: Chronic body pain Brain fog Migraine Ocular migraine Nausea Daily diahrea Muscle weakness Loose joints Painful teeth Sleep apnea Over stimulated Shoulder and neck pain Light headed Dizzy

And some other things I’ll add later if I can remember

i’ve had a colonoscopy, endoscopy, my Gaul bladder removed, sleep studies, many blood draws, fecal samples to look for parasites, a surgery looking for endometriosis.

Every time I get told I’m normal I feel so guilty, like I’m faking it and just need to fix myself.

Now my doc has said I’ve failed too many tests and need to go out of state to the Mayo clinic for more help…

My therapist said I should try a different doctor first because I haven’t been 100% honest with my current doc… I’m trans and can’t come out to my current doc because it is a catholic facility. I went to catholic school- I know better than to talk. So my therapist wants me to try an inclusive hospital first.

I don’t know what to do. I feel pretty hopeless because I struggle walking and writing due to the amount of pain and weakness I have. I want to get better. But I’m so tired of being told there is nothing wrong with me.. ( due to trauma I struggle with self validation so that doesn’t help at all)

What would you do?

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The Mayo Clinic is great! I would think they would be the ones to help you. Is your doc willing to refer you there? I know it’s a pain to travel out of state, but it could be promising.. they are amazing.

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1 year ago