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I’m sick of being a zebra
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Back on May 12th I started having pain in my hip and leg. Excruciating pain, laid down on the floor of my job(I’m a teacher, those floors are not clean), for a little relief. Went to the urgent care on the 16th was given muscle relaxers and steroids for assumed sciatica. Tried a chiropractor on the 18th.

It didn’t help. All the while in contact with my primary. On the 22 I went to work, where I almost fainted, went to the ER. I was freezing hot, sweating but my skin was ice, and threw up twice. My heart rate was all over the place, my blood pressure wasn’t stable my wbc count was 19. They kept focusing on “ nausea”. Ignored that I was in pain and ultimately sent me home saying they didn’t know what was causing any of it and I should see my primary.

Luckily I got in the next day, but while there I did faint and was showing all the signs for SIRS. So primary sent me back to the ER via ambulance.

There they gave me some sort of med, but didn’t document it. Said I had a uti, but didn’t document it and none of the labs backed that up. And after 5 hours sent me home saying the only thing that was wrong was my electrolytes, when I add electrolytes to water and drink it every day. Whatever the med was, it helped the pain, but I was told it was an antibiotic.

Couple days later follow up with my primary who is angry at the hospital. Decided to order an MRI and send in an antibiotic just in case. Due to a new computer system it took a week or so to get that medicine.

Finished the medicine on Monday, and my hip and leg stopped hurting. Now it’s Thursday and the pain is coming back.

I’m still waiting on a call to set up the mri but I’m half afraid I won’t get it.

I’m just sick of being a zebra, or as my sibling calls me, a hot house flower! I go to doctors and the think horses, but I’m not a horse. I have an autoimmune disease that’s “uncommon” and a lot of doctors don’t know about. I’m tired of being in pain and tired of my foot falling asleep. What should work doesn’t, what shouldn’t work does. I just want to wave a white flag at this point.

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Posted
1 year ago