I’m in a pickle. I have lots of health issues, right now my Crohn’s is acting up despite me being on infliximab for four years.

In January I started experience joint pain, arthritis, chest pain and fever and fatigue. Started getting labs done. GI said “We need to meet to discuss your treatment”. Schedules it for three months out. It was the earliest they could get me in.

Turns out that they knew in February after my labs in January that I have drug induced lupus and infliximab antibodies.

Despite them knowing that and not telling me, I continued to get my infliximab treatments. My symptoms of lupus got worse and worse.

Last week the GI told me that we need to switch me to Stelara. She told me that I need to give some stool samples before they can give me prednisone to help the lupus symptoms.

She told me, “I can imagine you are in a lot of pain based on the levels of inflammation in your body. I can’t give you prednisone yet and I can’t prescribe pain medicine here (she stated the office is not allow to prescribe them)”

She suggested I go to my GP this week and ask for a weeks worth of pain killers (because I cannot take NSAIDs with Crohn’s and Gastritis)

Has anyone had to do this? I feel weird going into my GP office and saying “My GIs office is not allowed to prescribe pain meds, so she suggested I come to you for a weeks worth while we wait on my results so I can start prednisone”

I am looking for advice on this whole situation…. Has anyone had drug induced lupus too?