My CRPS is in my feet and the SCS leads are on T10-12. For the first week or two after surgery, I could feel the tingling in my lower legs and sometimes in my feet. Then all of a sudden I couldn't feel it in my feet/lower legs, it was in my knees. Then my thighs, then hips, then my lower abdomen. I was going in every week, sometimes multiple times a week, to get it programmed but I always felt worse afterwards. I finally turned it off for a few weeks because the tingling was making me nauseous.

Recently turned it back on and the tingling was up under my ribs/in my stomach?! It's like it keeps getting higher and higher, and it's freaking me out. And it's not like I can feel it from my stomach to my toes, it's only in my stomach. Nothing at all in my legs or feet. I got an x-ray last week and the leads have not moved. Has anyone else experienced this? My doctors and the reps seem to be at a loss for words at this point.

If anyone has any insight on this or any idea why this might be happening, it would be very much appreciated.