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Rheumatologist diagnosed me with CRPS... however my case is widespread pain everywhere, and no swelling prior to diagnosis
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I'm 18, and I have been bouncing from doctor to doctor over the past two years for severe chronic pain all across my body. I believed I got it from exercising and pushing my body too much.

It first started in my hands, then after a few months my legs, and then everywhere else. It just kept expanding. From feet pain, to arm pain, to ear pain, to jaw pain, to butt pain... pretty much everywhere. I also have brain fog and digestive issues. No swelling however, but some heat and alot of redness all over body.

I've really only talked to my rheumatologist collectively for 45 minutes in 2 visits. She diagnosed me with CRPS, and even though I was excited that I finally got a diagnosis... after doing research after the 2nd visit... I kinda felt like maybe it wasn't right.

I've never experienced swelling before, it practically spread everywhere in six months, and I didn't really feel like I matched with everyone else's experience for CRPS. However, I do match a lot with Fibromyalgia, yet that's a disease for exclusion so I'm not sure.

What's weird is that a few weeks ago, my pinky toes started swelling out of nowhere randomly. Literally has never happened anywhere before. There still pretty swelled and red, so much so they hurt.

I feel really dumb because I know I'm wrong... but I just need reassurance. Because from what I've read as well, this disease is fucking brutal, and I'm in denial to believe I have this frightening condition. I'm already suicidal due to the pain though. I'm so scared.

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1 year ago