I was recently diagnosed as having hyper-mobile Ehlers Danilos syndrome. My primary care doctor doesn’t know much about my condition and when I asked him about recommendations for doctors who specialize in hEDS, he didn’t have any advice.

So anyone else have EDS? Do you have any recommendations or suggestions on clinics, facilities, hospitals that deal with Hyper-mobility spectrum disorder, or EDS? Recommendations for a decent pain management clinic/ dr who has experience with EDS? All my internet searches are trying to send me to LA or up north. Bakersfield has got to be big enough to have someone here who knows what EDS is and how to treat it/me.

Please and thank you!