I used to lurk around here as iguana133 (I believe). It’s been one year and one month since I started twitching. I laid in bed for months watching life pass me by, I lost 30 pounds, didn’t eat, didn’t sleep, just absolutely convinced I was going to die. Even though I have no idea what happened to me, I am okay now. I still twitch but I have tuned it out, it’s just another weird thing about me. My hotspots are my tongue, thighs, and armpit. I’ve had two EMGS and was diagnosed with BFS. I believe my symptoms are due to severe uncontrolled anxiety and maybe scoliosis. I no longer worry about ALS. it doesn’t even cross my mind anymore.

If anyone needs any help please reach out to me. I know it is a dark place to be in and I wish I could take this anxiety away from each one of you.