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Why Autism, why not some other Label?
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I have recently read Unmasking Autism by Devon Price. It was a most uncanny experience. Devon describes my daily struggles, all my quirks, and even my biography in troubling detail. That set me off on a wild ride researching everything and reading every book I could find on the ND movement and Autism. I am fascinated by and fully support the ideas of the ND movement, but I also recognize the widespread criticism. Similarly I am deeply moved by personal accounts of struggling members of the r/spicyautism subreddit, as well as I feel totally at home in this one. Though I keep struggling with the question: Why Autism? Why not Singerism (Judy Singer) or Devonism (Devon Price) or Williamsism (Donna Williams)? Why not just NDism? Or any other label. Why are we attached to Autism? I see the similarities, but I also see the differences between someone like me, who has very low support needs and people who can’t survive without constant care. Why are we under the same umbrella and fighting with the medical community. Yes it’s a spectrum, but why is it such a massive spectrum? I assume that my thinking here is somehow flawed, but I don’t know why. I ask in good faith, in no way I want to invalidate anyone, I rather feel invalidated by my thinking myself. I really struggle with the label, especially after spending a couple of nights on r/spicyautism. I talked about it both with my psychologist and my psychiatrist. Both told me in professional terminology, that it is a completely ludicrous Idea that I might be anywhere on the spectrum. Maybe that’s why I want to invent my own label, I don’t know. Any input by this community would be deeply appreciated. Especially since I can't find any papers on this question. Probably because the question itself seems to be somehow wrong.

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1 year ago