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I have moderate to severe gastroparesis from mitochondrial disease and have been experiencing worsening stomach pain as a result all week. Last night I hardly slept and it just won’t relent. It hurts in the center of my chest/upper abdomen and then down along the bottom of my left ribs, like a constant internal Charlie horse combined with intense pressure. The reflux is also constant even though no food has been added to my stomach today (there is still food from at least a day ago refluxing into the back of my mouth). I can stay hydrated with the IV fluids I run daily at home but the pain is pushing me to my limits.
Things I have tried: Reglan, Zofran, Carafate, Bentyl (I know it further slows digestion but was prescribed for the spasmodic pain), Maalox, heating pad (caused me to start retching), lying on my left side (minor benefits), hot tea, increased Prednisone dosage
Things I have access to but haven’t tried: Compazine suppository, Phenergan, extra bolus of fluids, warm shower (this seems unsafe given my exhaustion and physical disabilities), ice packs
I just want to stop hurting long enough to sleep at this point. Would going in to ER be worth the time and misery or would they likely have nothing more to offer? I know I already have access to a small pharmacy at home.
Female/40s/average height/fat
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- 11 months ago
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