I’m 27 with an unruptured left posterior frontal and parietal AVM. Recently discovered in November 2023 Angiogram done December 2023

Found the avm by chance never had a seizure or serious symptoms relating to avm

First neurosurgeon recommended monitoring it every year and not touching it due to the high risk of surgery about 40% chance of weakness on my right sight and possible speech

Sent over my images/angiogram to a neurosurgeon at Boston Brigham and he wanted me to get a fmri and would like to possibly remove the avm rather than monitor it

I’m gonna get about 3/4 other opinions and wait until November 2024 to get another mri and see if any changes happen to my avm

This has all been very hard for me to deal with as I thought I had a happy normal life ahead of me with no health problems. My whole world has been rocked and honestly feel helpless in this current moment.

Absolutely terrified that a rupture can happen any moment and I’m absolutely terrified about going to get brain surgery for the removal of my avm. I’ve lived 27 years full and normal i couldn’t imagine being alive not being able to use the right side of my body or speak.

Is there anyone else going through a similar case with their avm? Is there anyone that has been in my shoes and wants to give their 2 cents?