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I feel slightly confused so i hope asking here will clear this up.
I feel like my symptoms sound a lot like dysautonomia, however, i have zero heart or blood pressure issues.
I been tracking my heartrate with two devices for months, including having longterm EKG. I also been measuring my blood pressure at home and then at the docs more than once.
I want to know which questions to keep asking my docs. They say POTS isnt an option due to the above.
It seems way more likely to be a blood oxygen issue bc of my low iron, haemoglobin issues and weird shaped erythrocytes but then i read this can too be a dysautonomia thing.
At the docs my blood oxygen is always normal but my personal observation shows significant drops way under 80%. However, those drops dont always correlate with my symptoms. And i been told oxygen drops if only temporary can be normal. Mine drops to 70% for a minute or two after (not during) i exercise and then goes back to 100% when i sit. But again, his wasnt noted by the docs as they claim thats irrelevant and they could never witness it in person.
I havent been able to notice any physical changes when my symptoms arise, other than the correlation with exhausting moving (exercise, walking stairs), lifting heavy objects or standing for a prolonged time.
I also been told (speculation by docs) that all my exhaustion stems purely from my high inflammationmarkers, but isnt correlation with inflammation a dysautonomia thing too?
What kind of questions should i be asking? What tests should i be doing? What doctors do you suggest? And finally, am i wasting my time speculating if its dysautonomia? It does seem blood pressure is the major factor here, correct?
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- 1 year ago
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