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I hate when people use that term. I’m not fighting for anything here. I know symptoms are a spectrum and everyone’s experience is different and I’m not invalidating anyone’s experience. But dammit if it feels like I’ve got the worst possible outcome. I’ve lost control of everything below my waist. Can’t walk, catheter, colostomy, no erections, weak torso, reduced dexterity, can’t dress myself or shower. And that’s just what I’m going through now, not mentioning the symptoms I’ve gone through to get here. When I talk to people it’s like “my arm gets numb in the heat” or “I stumble when I walk.” Went to a support group, about 15 people, and mentally I went around the room “had that, that, that, that...” to everyone in the room. So what am I fighting for? Trying to live the next day. I’m no warrior, just an empty shell of a person, just existing until the end.
Ok, rant over.
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- 3 years ago
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